Chronic fatigue syndrome: help young people regain their lives

Twenty years ago the Archivist sat in a clinic for children and young adults with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) with Dr Kathy Rowe. This clinic has been running for well over 30 years. When this clinic started, there was many an eminent educationalist or healthcare clinician who would argue that this diagnosis didn’t exist. It was refreshing to see the results of a long term follow-up study assessing the value of these clinics and the patients cared for within the clinic. Rowe K [Acta Paediatrica 2020;109:790–800. DOI: 10.1111/apa.15054] reports a prospective cohort study of 784 young people with ME/CFS. These patients provided feedback across a 14-year period regarding helpful strategies and ways to improve their management, using a qualitative questionnaire feedback. Between 1991 and 2009, these children and young adults age 6-18 years, were diagnosed with ME/CFS following referral to a specialised clinic at the Royal...

from Archives of Disease in Childhood current issue https://ift.tt/2KhkIJ6